My daughter Alexandra died 38 years ago today, and I still think about her every single day.  My daughter was beautiful with the fairest skin, the blackest hair, black eyes and rosebud lips.  For anyone who has lost a child the ache in your heart never leaves you, it remains in one corner and the ache never goes.  I often wonder what she would have been like if she had lived, I never think of her as disabled although if she had survived she would have been severely impaired and in a wheelchair.  However for me I see this grown woman with long black curly hair, independent, a free spirit and loved by all.  Many years ago I heard the words to a song and have always wanted to sing them to her – although I am an appalling singer I think of her when I hear the words so today for you Alexandra my beautiful angel these words are for you and all our babies who are beside you in the clouds……..